So i had clinic today, i didn't originally have an appointment today but because I've been unwell i changed it from the end of the month to today. Anyway, i got there and had my sats and lung function done, my sats were 88% on air and wouldn't budge, and my lung function was at 28%. Great, however I've managed to put on the weight i lost over Christmas, but I've lost my appetite again so I'm hoping i won't lose it again even though I'm on regular night feed through my tube.
Although, i was planned to see my main consultant i ended up seeing a reg, which really annoyed me. However, she didn't seem to bad. She went over everything and checked my chest, but said she couldn't hear much as there wasn't an awful lot of air entry because how shallow my breathing is. After she checked everything she went and got one of the other consultants to make a decision, why i didn't see her in the first place i don't know!
so the Consultant came in and ask questions, seen i wasn't well and that i needed IV's but like always there were no beds! Getting a bed on my ward is like sieving for gold dust honestly! I can't even have home IV' s because my brother. So now I'm currently waiting on a bed, which i hate!
She also discussed transplant with me, she asked if i had heard anything which i haven't yet, but i still have to undergo some more tests!
I really just want to know which waiting list I'm going to be on because I really want to drive to France with my family and best friend in May, yeah we have to drive because my lungs can't take the flight. So wish me look their guys.
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