Firstly, a few of you have noticed lately, I haven't been quite myself. Well, two Wednesdays ago, I had an Harefield appointment and to say it didn't go according to plan is an understatement. As soon as i walked in my transplant consultant, told me he didn't recognise me, as I looked a lot iller this time than i did back in January/February last time i seen him. He continued by asking me why I hadn't signed the Lobar transplant papers, I hadn't because the other times I had been there it was only briefly mentioned. This is where things started to get serious. He told me straight, which I always appreciate, I hate when Doctors try and sugar coat things, I mean I know they do it to be nice but I'd rather them be blunt with me. He told me, I was running out of time and that he didn't think I would get a 'normal' transplant in time. I'd die on the list or i'll be too ill to receive one, he gave me 6 - 12 months to wait for a transplant and 6 - 18 months left to live. I didn't really know what to say, and to stop myself crying, i pretended to cough, which then actually made me have a coughing fit, well at least I could hide my tears. He carried on to tell me, that he thinks my only hope would be a 'Lobar' transplant, which means the team will receive lungs that are too big for me and cut the lower lobes off and just transplant them. Having a Lobar transplant, would give me a higher chance of getting a transplant, but it is a longer more complicated surgery, a longer and harder recovery, and obviously a higher risk. It is also a very rare op to have! He also told me that he would try and get me on the paediatric Lung Transplant list, although there is a high chance they will say no, and Great Ormand Street would prioritise if it came down to me and a child, which at the end of the day they're a child of course they should prioritise over an adult. He then asked me if I had any questions, but as you can imagine, I was in such a state of shock that I couldn't think of anything. I mean I knew sooner or later I would be given my life expectancy, but it doesn't make it any easier.
After, a very very hard conversation with my parents, and giving myself some much needed time to myself, I called Harefield with a bunch of questions, I agreed to go ahead and sign the paper work for the Lobar transplant. I mean if i was willing to take the risk of a 'normal' transplant I may aswell take the risk for a Lobar one. I also found out that after my consultant had pleaded my cases to go on the Paediatric list, they did allow me on. So now hopefully I have some more options.
I just want to thank the small amount of people I did tell, for being so supportive and waiting until i was ready to talk, because for a while i didn't to talk to anybody about it, i didn't even really speak to my parents about it, until I kind of didn't have a choice, and if i'm honest, I don't think I'm still 100% ready to talk about it.
On a better note, I turned 20 last week! My god, did I not want to turn 20! I cried at the fact I was no longer a teenager, I feel so old! However, considering I was looking forward to my birthday and I was stuck in hospital, I actually had such a lovely day! I woke up to my physio and nurses decorating my door with balloons and banners (even though i'm petrified of blow up balloons, I know I'm a baby) to my mom bringing up breakfast and helium balloons! Whilst my mom and I ate our breakfast and I opened my cards the nurses and my physio came through the door singing Happy Birthday with a cake, (first cake of the day!) They then laughed as I couldn't blow my candles out, damn shitty lung capacity!
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| My 3 birthday cakes |
Later that day/night they let me off my Aminophylline drip to go out for a meal with my family and Mais. After discussing where to go for a week, we decided to go Bar Estilo, which is a tapas bar, right up my street! We ordered so much food, but it was so good! If you have one by you, I 100% recommend it! We then ended the meal with another cake (which my mom made). I'd lost 5kilos while I was in, I think its safe to say after all that cake I must of put it back on! I had an amazing birthday and i was so spoilt by everyone, seriously I can not thank people enough, thank you so so so much! I love you all!
A few days later, I got another amazing surprise! For months my mom and I have been speaking about Adee Phelan's new salon opening in Birmingham the Custard Factory! I entered competitions and tried countless times to get an appointment, but nothing! So, when he turned up in my hospital room on Friday, I couldn't believe my eyes, I think all i said for a good 60 seconds, was omg! How was this even possible!? Well my sneaky and amazing friend Kelly, has set the whole thing up for a birthday surprise and to cheer me up! I mean I couldn't thank her enough, I owe her big time! Adee, cut my hair for me and gave me a shit ton of products, and invited me to his Salon! I was just in complete shock! He was one of the loveliest, caring, funniest person I have ever met! He truly is a very amazing, special man! And Kelly, well I can't even begin to explain how much i love her, she is a very very special person and means a hell of a lot to me. Oh, Btw if any of you have a spare couple of pound, would you sponsor Kel for me, she's doing a zip wire for CF, the adrenaline junkie! I would love to join her but unfortunately I am no longer well enough to be able to do things like that! She has £150 to raise in a small amount of time, it would truly mean the world to both of us http://uk.virginmoneygiving.com/KellySercombe
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| Mais, Eth, Momma, Daddy |
A few days later, I got another amazing surprise! For months my mom and I have been speaking about Adee Phelan's new salon opening in Birmingham the Custard Factory! I entered competitions and tried countless times to get an appointment, but nothing! So, when he turned up in my hospital room on Friday, I couldn't believe my eyes, I think all i said for a good 60 seconds, was omg! How was this even possible!? Well my sneaky and amazing friend Kelly, has set the whole thing up for a birthday surprise and to cheer me up! I mean I couldn't thank her enough, I owe her big time! Adee, cut my hair for me and gave me a shit ton of products, and invited me to his Salon! I was just in complete shock! He was one of the loveliest, caring, funniest person I have ever met! He truly is a very amazing, special man! And Kelly, well I can't even begin to explain how much i love her, she is a very very special person and means a hell of a lot to me. Oh, Btw if any of you have a spare couple of pound, would you sponsor Kel for me, she's doing a zip wire for CF, the adrenaline junkie! I would love to join her but unfortunately I am no longer well enough to be able to do things like that! She has £150 to raise in a small amount of time, it would truly mean the world to both of us http://uk.virginmoneygiving.com/KellySercombe
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| me and Adee x |
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| me and Kels x |
Last but not least, my mommy and daddy and my mommys best mate, brought me a kitty! After nagging and nagging for so so long, my mom and dad finally gave it, which i never thought would happen. My dad hates cats, so him giving in came a complete shock to me! We got her Saturday and she truly is my little bundle of happiness, I love and adore her so much, she's so beautiful and tiny! Everybody meet Princess ( I wanted to name her a Disney character, but none suited her and she thinks she's a little Princess, the little madam)
If you have made it this far you deserve a pat on the back, because this was a long ass blog post, which probably bored the living day lights out of you! But Thank you if you made it this far!
I just want to say again, Thank you everyone for the support, it really means so much! Love you all!
Till next time...
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