Hi guys,
I've really lacked on this blog lately and i've missed writing on it, but health and Uni have just got in the way. Uni has been way too stressful lately and I'm really not enjoying it that may be because my health just seems to always be in the way of uni.
On an update level, I went in for four weeks of ivs not too long ago, and within just two weeks of being out I was back in, however, this time was going to be even more annoying! After, feeling like I had pulled a muscle in my armpit, we found out that I had a line of blood clots collecting above and in my port! So, with finding that out at 5pm on a Tuesday night by half 5, I was placed on the emergancy surgery list to have my port removed and a new one inserted, ok fine! No, not fine, the surgical team came and seen me that morning to tell me that they were taking my port out but they wouldn't be putting a new one in, great so i'll have no IV access as a cannula (venflon) wasn't really an option as they simply just A) dont last B) they cant get one in my tint veins! So after a long argument with a women on the surgical team who spoke to both me and my mom like idiots ( Seriously love, dont try it, i know how this works a lot better than you as I've been going through this all my life)
Well anyway, after being NBM (Nill by mouth) for over 24hrs they finally came and got me at 11pm on Wednesday night, are you serious! Above all, I had a surgeon that really didn't have a clue, as lovely as he was he just didn't! I had to inform him what line I had in, where it went and how it is positioned. So i went down and came back up at around half 1, in a lot of pain as apparently they really struggled to get the line out, as it was a lot deeper than it looked/ felt.
A few days later, once I had recovered and I could start moving easily on my own without being in too much pain ( I recover my surgery awfully, to them CFs who recover from port surgery pretty much straight away like some of my CF friends) I was sent down for a PICC line, which I knew was going to be a problem as my veins are shocking! Also, with them only being able to use the one arm they were even more limited! After 4 attempts, 3 screams and two rows later with the surgeon who did my PICC we had one it, however, it was only a TINY 6cms long, anyone who knows about PICCs know that they are at least 20cm, so mine wasn't really even worth a venflon title but as this point, I was upset, frustrated and pretty angry so I took it!
I'm currently on Clexane injections and if you've been on them you feel me when I say they are a nightmare, I didn't know my body could bruise in the colours that it has been! I'm now also waiting for a date to go back down to surgery for a new port as me, my team and Harefield are desperate to get me a new one, however the surgeon who does them is being a bit of a twat! (Shouldn't really say that as I'm waiting for him to cut me open!) Hopefully it will be soon though!
LAST BUT NOT LEAST...
I just want to say a few little words about Organ donation, I don't want people to feel like me and other CFs are ramming it down your throats but we just want you to understand how serious it is! I mean so many people tell me that they want to do it but there too lazy to go do it. Just think, it takes 5 minutes to sign up if that and that is someones life you have just saved! Every 1 in 3 CFs dies waiting for a transplant and I don't want to be one of those people, too many have died waiting on the list, and its not fair this shouldn't be happening.
Do something good, become an Organ Donator
https://www.organdonation.nhs.uk/
Thank you,
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